tag:blogger.com,1999:blog-4615877796681762684.post2601062916269758122..comments2023-10-20T05:02:24.684-07:00Comments on Living with Chronic Illness: June is National Myasthenia Gravis Awareness MonthKerri http://www.blogger.com/profile/06070983658642888724noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-4615877796681762684.post-6327964480318246232010-03-17T21:31:45.399-07:002010-03-17T21:31:45.399-07:00Wowzers! That's an amazing story. I'm so g...Wowzers! That's an amazing story. I'm so glad you found doctors that were willing to help you. That's got to be frustrating, having them tell you it's all in your head.Miz Dinahhttps://www.blogger.com/profile/03580865244722844834noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-87021365208977949532010-03-17T11:42:01.966-07:002010-03-17T11:42:01.966-07:00Wow, you definitely are a miracle, no doubt about ...Wow, you definitely are a miracle, no doubt about it. I had no idea bout this horrible disease, I hope and pray for a cure, until then I will pray for you.Mariehttps://www.blogger.com/profile/01425113373840614616noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-56690259834550734902010-03-16T23:07:27.517-07:002010-03-16T23:07:27.517-07:00Kerri, bless you for this post..I am wiping tears ...Kerri, bless you for this post..I am wiping tears from my eyes..from your faith and strength in dealing with this. I also have a chronic illness, not as severe as yours, but debilitating all the same, fibromyalgia. And I get the same thing..gee ' you look ok'..or ' you could feel better if you tried'. Like I want to feel this ill most days! Ugh..anyway, I signed up to follow you you have a mission in life my dear.<br />hugs<br />BarbDogmom Divahttps://www.blogger.com/profile/00200083614598683445noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-15236561327510405632010-03-16T15:22:35.148-07:002010-03-16T15:22:35.148-07:00wow. you are truly a fighter. thanks for sharing...wow. you are truly a fighter. thanks for sharingscrappysuehttps://www.blogger.com/profile/04820776600535640590noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-23047784262969792172010-03-16T13:45:43.919-07:002010-03-16T13:45:43.919-07:00Thank you for sharing this. I really liked that yo...Thank you for sharing this. I really liked that you didn't seem depressed about your history; your story comes across as upbeat, a survivor.Anonymoushttps://www.blogger.com/profile/02872774986718747530noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-18858907206131265532010-03-16T11:43:44.626-07:002010-03-16T11:43:44.626-07:00SO TRUE. I have Scleroderma & I'm just now...SO TRUE. I have Scleroderma & I'm just now dealing with acceptance (although it's been 21 years) & learning to deal with the fact that people CAN'T see what's wrong with me & may judge.... I'm always an anxious type about what people think & this has been very hard to deal with! You have been through so much & dealt with the same types of Dr.'s I have (unfortunately). I'm with you on the child thing - we're just getting ready to really pursue starting our family & I'm scared to death about not being able to RAISE my child. I know I can make it through carrying him/her (I assume!), but it's what comes after... dealing with chronic illness IS tiring and it's tiring, so that doesn't hlep. It's like a double dose of TIRED! LOL.... But you sound like you've figured out how to hand it over to God & let Him help you. I'm on the road to that. It's a hard road... but I'm at least on it. More than I can say for the past 20 years..... blessings!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-20948951172901534232010-03-16T11:04:26.670-07:002010-03-16T11:04:26.670-07:00Bless you!! You have been through so very much. Wh...Bless you!! You have been through so very much. What an amazing attitude you have and your son is GORGEOUS!! Hugs to you:)scrapwordsmomhttps://www.blogger.com/profile/11643969932237955981noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-89303676167867356972010-03-16T10:56:11.574-07:002010-03-16T10:56:11.574-07:00wow... what an incredibly hard journey. It's ...wow... what an incredibly hard journey. It's a good reminder to us all to not take our health for granted and to not judge others when we don't know their back story. <br /><br />thanks for sharing. Happy sITS day!Patriciahttps://www.blogger.com/profile/17943532025439642674noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-39808089816784458592010-03-16T10:28:11.541-07:002010-03-16T10:28:11.541-07:00Wow I love what you wrote at the end. I wish more...Wow I love what you wrote at the end. I wish more people could see that we are chronicly sick and not judge us like they do.<br /><br />Thank you for writing this.<br /><br />Hang in there.Margarethttps://www.blogger.com/profile/10922132258928571341noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-76598222454965061412010-03-16T08:51:16.699-07:002010-03-16T08:51:16.699-07:00You are an inspiration. I complain about being ti...You are an inspiration. I complain about being tired. I am an idiot. When there are people like you out there truly struggling to make it through the day, I should be ashamed. Thank you so much for sharing and congrats on your SITS day!Heatherhttps://www.blogger.com/profile/11077438939282635021noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-73124407822432697602010-03-16T08:29:06.764-07:002010-03-16T08:29:06.764-07:00You are truly an amazing person. Thank you for sha...You are truly an amazing person. Thank you for sharing your story! It is hard being a female because doctors like to dismiss symptoms as anxiety, or all in your head! I have been there. Be strong and keep fighting!The Random Blogettehttps://www.blogger.com/profile/09189747977991245122noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-7186636213662576692010-03-16T08:26:26.793-07:002010-03-16T08:26:26.793-07:00You are one brave and courageous woman. Your atti...You are one brave and courageous woman. Your attitude inspires all who read your blog. Thank you for educating me regarding your disease. As others have said so eloquently, you are not letting this illness get the best of you. I will pray for you and for the "best" yet to come.Expats Againhttps://www.blogger.com/profile/17179740220723589771noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-17997177375984595262010-03-16T08:08:50.834-07:002010-03-16T08:08:50.834-07:00Wow, You have really been through it but have kept...Wow, You have really been through it but have kept your humor and positive attitude...that has to be a God thing! Thanks so much for sharing your story I will be praying...I'm stopping by from SITS...Happy SITS day to you! God Bless and may His face shine upon you today and beyond! The littl one is adorable...I have 3 teen boys and one 9 yr old girl...Survivormamahttps://www.blogger.com/profile/09363232459227919604noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-90259132064706643342010-03-16T08:04:28.136-07:002010-03-16T08:04:28.136-07:00It is all too common now days for doctors to send ...It is all too common now days for doctors to send folks home with the "It is all in your head" diagnosis. Partially it is Western Medicine practice in general but the Doctors need to take repsonsibility for themselves. <br /><br />I encourage you to look at some natural ways to help manage your chronic illness. Here are some sites I came across that may help. <br /><br />http://www.alaskawellness.com/mar-apr00/mg.htm<br /><br />http://www.amazon.com/exec/obidos/ASIN/0028620593/stellarbooksandt<br /><br />http://www.regenerativenutrition.com/natural-supplements-cure-myasthenia-gravis.asp<br /><br />http://www.health-science-spirit.com/myasthenia.html<br /><br />http://hubpages.com/hub/Natural-Remedy-for-Myasthenia-Gravis<br /><br />this was truly a quick search. I encourage you to research it. There are many quacks out there so you need to be careful but the nutritional end of your illness should not be ignored. <br /><br />I would like to see your quality of life improve and I think you can do it. It is sad to say our Doctors of today do not place enough emphasis on our way of eating but do know that it is key to many successful treatments.Heidi Walkerhttps://www.blogger.com/profile/04724589715266845300noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-61753916577216913542010-03-16T07:30:22.794-07:002010-03-16T07:30:22.794-07:00What an amazing trip you've been on, I am hear...What an amazing trip you've been on, I am heartened to see your wit and humor,despite the harsh realities. I look forward to learning more about you. Thank you for sharing, and I pray you enjoy your SITS day.Anonymoushttps://www.blogger.com/profile/11129662082248482002noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-89348531080136298072010-03-16T07:16:56.301-07:002010-03-16T07:16:56.301-07:00What an incredible story, Kerri. Thanks for sharin...What an incredible story, Kerri. Thanks for sharing it with us! If you like to read health books (like I do), I recommend a fascinating book called "the Fourfold Path to Healing" by Dr. Thomas Cowan. This doc takes a different approach than the docs you described in your story. I don't know if he addresses MG directly, but maybe you will find a clue to lead you on the right path. Best wishes to you on your journey!Melissahttps://www.blogger.com/profile/05073281099382894768noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-83044284724059466312010-03-16T06:51:08.445-07:002010-03-16T06:51:08.445-07:00That is an amazing story. God was a part of all th...That is an amazing story. God was a part of all the miracles. Thanks for inspiring. One of my favorite scriptures is Philippians 4:13 I can do all things through Christ who strengthens me.AmberRayhttps://www.blogger.com/profile/16728005918657858605noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-32506891112963819962010-03-16T06:47:43.814-07:002010-03-16T06:47:43.814-07:00Wow thank you for your story. I think you are a ve...Wow thank you for your story. I think you are a very strong woman to have survived that and an amazing mother for contueing to be strong for your son. Sending you lots of blessings and healing wishes. ps have you ever tried acupuncture with this condition? I'm currently attending and I don't know if it would help, but possibly?Nicolehttps://www.blogger.com/profile/05214792179573054167noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-19319314537513541662010-03-16T06:30:54.251-07:002010-03-16T06:30:54.251-07:00I love to read about people who are given a second...I love to read about people who are given a second chance at life and take that chance and do some good. I never knew what blood banks did with plasma. I've heard commercials for donating but never knew the importance. <br />Your son is definitely a gift from God. <br />Visiting from SITS.Tiffanyhttps://www.blogger.com/profile/13493576726012326958noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-12124758852223406112010-03-16T06:22:00.130-07:002010-03-16T06:22:00.130-07:00GOD is GREAT and he has a purpose for all of us an...GOD is GREAT and he has a purpose for all of us and your story is a prime example! Your little one is so precious.Amanda @ It's Blogworthyhttps://www.blogger.com/profile/14919340979575037179noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-27280583509914652512010-03-16T05:58:20.548-07:002010-03-16T05:58:20.548-07:00God bless you. Thank you for being brave enough t...God bless you. Thank you for being brave enough to share your story - with warmth and humour to boot! You really are a very special lady, I'm so pleased I found your blog through SITSbubbleboohttps://www.blogger.com/profile/11840807366594836810noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-3740070601642309622010-03-16T05:39:28.845-07:002010-03-16T05:39:28.845-07:00Wow. How brave of you to not only fight this illne...Wow. How brave of you to not only fight this illness with such spirit but also such wonderful candor. You are a shining example of people who don't let their illness become them instead they conquer their illness. Maybe not physically, but in your brave heart and soul. I am so happy for you that you were able to have that beautiful boy. Bless you and your family.Joann Mannixhttps://www.blogger.com/profile/11163491824085428085noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-77133696422681483032010-03-16T04:29:15.681-07:002010-03-16T04:29:15.681-07:00Before I was diagnosed with my RA (and all it'...Before I was diagnosed with my RA (and all it's lovely side effects) I went to a neurologist who tried to give me lessons in visualization. Can you believe that? Then he put me on a medication that made me a zombie. It was a very dark time.<br />Thanks for sharing your story.Shelleyhttps://www.blogger.com/profile/12752658464447522549noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-43457983756572281442010-03-16T03:27:46.619-07:002010-03-16T03:27:46.619-07:00Thank you for sharing your story. I have a friend...Thank you for sharing your story. I have a friend who's being tested right now for a chronic illness, and this helps me see how hard the walk in her shoes would be if it comes to pass that she has the illness. I applaud your strength and courage and hope that you continue to beat this illness!Elizabeth D.https://www.blogger.com/profile/17014143188330661608noreply@blogger.comtag:blogger.com,1999:blog-4615877796681762684.post-34419238702309449662010-03-16T02:42:41.747-07:002010-03-16T02:42:41.747-07:00Thank you for this. I have female family members c...Thank you for this. I have female family members constantly being dismissed for symptoms that impact their quality of life. I am glad you were able to survive and see a diagnosis and not continue to be dismissed.TuTu's Blisshttps://www.blogger.com/profile/13171659325216495400noreply@blogger.com