For anyone who doesn't believe in God, come to my house and let's talk for a few days.
I feel awful. Like I can either muddle through or give in, curl up and wait to go to the hospital. I WANT to give in and curl up. My flesh is screaming, imploring me to just give up. Yesterday I was on oxygen all day because I couldn't breathe. Add to that the MG is kicking my butt because of the cold. Barely made it up the stairs last night.
Add to THAT, Jacob is sick. And crabby. And demanding. And 2 1/2. And heavy. (Praise God his fever is gone). Doug's got a lot going on at work, and though I beg him to come home as early as possible, he has things that come up that he has to deal with.
So how, you're thinking, how does this have anything to do with whether or not there is a God?
Because I am telling you from the depths of my soul that if there were NOT, I would not be sitting here typing this note, about ready to bawl. I could NOT do this on my own. No human could. Yet I keep putting one foot in front of the other. I beg Him to take it away, yet He chooses not to. I beg Him to not get colds and flu, but He allows it. I beg for Jacob to stay healthy, to understand, to not demand so much from me. God says, he's 2 1/2. Some days, like today, it is as if God Himself is picking up one leg and placing it forward. Then the other. Then back to the first one. He will make a way. He has to.
There IS a GOD and His name is FAITHFUL. His name is STRENGTH. His name is GRACE.
True, the human spirit can endure more than one may think. But I'm telling you, I could not. So many days I want to give up, but I hear, "My grace is sufficient." I want to yell and scream at the heavens and plead for God to just come and take it all away. But I hear, "I will never leave you or forsake you." I say "But I feel forsaken!!" And I hear, "Because you're looking at the wind and waves, not the Water-Walker."
There IS a GOD and His name is SAVIOR. His name is POWERFUL. His name is HOPE.
And if you think you could possibly deny Him, come and talk to me. If there has ever been proof, it is living in my flesh and blood.
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
Thursday, March 26, 2009
Wednesday, March 25, 2009
Prayers Please
Hey all...
I'm worse than yesterday, Jacob has a fever, and Doug is getting whatever this is too...
Ann Arbor is cancelled for Friday...rescheduled for next Friday, hopefully.
Please pray Doug doesn't get it bad, that Jacob gets better quickly, and that I don't end in the hospital!
Thanks...
I'm worse than yesterday, Jacob has a fever, and Doug is getting whatever this is too...
Ann Arbor is cancelled for Friday...rescheduled for next Friday, hopefully.
Please pray Doug doesn't get it bad, that Jacob gets better quickly, and that I don't end in the hospital!
Thanks...
Tuesday, March 24, 2009
Trying to Lift the Fog
Okay, here's another "I-feel-like-crap-and-just-want-to-whine" post, so I have to list things I'm thankful for....
1. I am thankful that for the first time in 8 years, I was able to go to a meaningful event that I had posted on my calendar three months ahead of time.
2. I am thankful every day that my husband is a wonderful, Christian man, who loves me and has a stable job! (Everybody poops).
3. I am thankful that my mom and dad will be home from Florida in a week!
4. I am thankful for godly friends.
5. I am thankful for a precious little boy who, even when I'm a dork, loves me like crazy.
6. I am thankful that God's love for me is Measureless!
7. I am thankful that I have been able to go to Bible study twice this month.
8. I am thankful that I have a wood burning stove and a warm house.
9. I am thankful for living in the country where Jacob has room to roam. (And chase our 32 chickens, 4 turkeys, and 3 ducks. We have 2 dogs, now all we need is a partridge....we even have pear trees!!) Although 12 of our chickens, the 4 turkeys and 3 ducks are still in the mudroom.
10. I am thankful for technology that keeps me in touch with my friends.
What are YOU thankful for today???
1. I am thankful that for the first time in 8 years, I was able to go to a meaningful event that I had posted on my calendar three months ahead of time.
2. I am thankful every day that my husband is a wonderful, Christian man, who loves me and has a stable job! (Everybody poops).
3. I am thankful that my mom and dad will be home from Florida in a week!
4. I am thankful for godly friends.
5. I am thankful for a precious little boy who, even when I'm a dork, loves me like crazy.
6. I am thankful that God's love for me is Measureless!
7. I am thankful that I have been able to go to Bible study twice this month.
8. I am thankful that I have a wood burning stove and a warm house.
9. I am thankful for living in the country where Jacob has room to roam. (And chase our 32 chickens, 4 turkeys, and 3 ducks. We have 2 dogs, now all we need is a partridge....we even have pear trees!!) Although 12 of our chickens, the 4 turkeys and 3 ducks are still in the mudroom.
10. I am thankful for technology that keeps me in touch with my friends.
What are YOU thankful for today???
Sunday, March 22, 2009
Measureless....
WOW. I was able to attend a women's conference through InTents Life Ministries yesterday. The topic was Measureless love, and we used Beth Moore's DVD sessions. First of all, if you don't know who Beth Moore is, PLEASE check her out. She is an honest, down-to-earth, what- you-see-is-what-you-get, God fearing, God loving, passionate, powerful teacher of the Word. She is phenomenal! (And just so you know, the leader of InTents Life is a lot like her, so check out the button on my blog).
Anywho....If you are at all familiar with the Old Testament of the Bible, measurements were very important. Starting with the very creation of the earth. The "chance" of our earth being able to sustain life means that it had to be the right kind of planet in the right galaxy (there are literally BILLIONS of galaxies, only one of which is the Milky Way, of which earth is a tiny speck). It had to be the right distance from the sun, at the right tilt and rotation, with the moon a specific spot, not near a black hole, the right magnetic field. The "chance" of that happening is ONE in 150 million millions. That's like a 150 with 18 zeros or something. Just a side note, science is it's own downfall when it comes to proving evolution! It takes a lot more faith to believe in evolution than it does to believe in the Creation by the Creator!
So the "heavens" mentioned in the Bible are really an incomprehensible distance from earth.
Noah's Ark had very, very specific measurements. The temple or tabernacle that the Israelites worshipped in and sacrificed to God, where the very presence of God was held in the ark of the covenant, all were very specifically measured. Solomon's temple. Measured. I'm sure there are many more examples but you get the point. These things were very important to God. The ark of the covenant held the Spirit of God Himself! But the point is, all of these things were limited because they were able to be measured and made. They could have been duplicated, because the "blueprints" are in the Bible.
But when it comes to God's love for you...God's love for ME....it is MEASURELESS. It's unable to be replicated, it's one-of-a-kind. It is UNLIMITED.
How far are the heavens from the earth? That's how much God loves you.
How far is the east from the west? That's how much God loves you.
This is the passage the conference was based on: Ephesians 3: 14-21
For this reason I kneel before the Father, from whom his whole family in heaven and on earth derives its name. I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God. Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
Just remember that.....MEASURELESS.
No matter who you are.
No matter what you've done.
No matter what you haven't done.
No matter how healthy or rich or poor oryoung or old you are.
God's love for YOU is Measureless.
Anywho....If you are at all familiar with the Old Testament of the Bible, measurements were very important. Starting with the very creation of the earth. The "chance" of our earth being able to sustain life means that it had to be the right kind of planet in the right galaxy (there are literally BILLIONS of galaxies, only one of which is the Milky Way, of which earth is a tiny speck). It had to be the right distance from the sun, at the right tilt and rotation, with the moon a specific spot, not near a black hole, the right magnetic field. The "chance" of that happening is ONE in 150 million millions. That's like a 150 with 18 zeros or something. Just a side note, science is it's own downfall when it comes to proving evolution! It takes a lot more faith to believe in evolution than it does to believe in the Creation by the Creator!
So the "heavens" mentioned in the Bible are really an incomprehensible distance from earth.
Noah's Ark had very, very specific measurements. The temple or tabernacle that the Israelites worshipped in and sacrificed to God, where the very presence of God was held in the ark of the covenant, all were very specifically measured. Solomon's temple. Measured. I'm sure there are many more examples but you get the point. These things were very important to God. The ark of the covenant held the Spirit of God Himself! But the point is, all of these things were limited because they were able to be measured and made. They could have been duplicated, because the "blueprints" are in the Bible.
But when it comes to God's love for you...God's love for ME....it is MEASURELESS. It's unable to be replicated, it's one-of-a-kind. It is UNLIMITED.
How far are the heavens from the earth? That's how much God loves you.
How far is the east from the west? That's how much God loves you.
This is the passage the conference was based on: Ephesians 3: 14-21
For this reason I kneel before the Father, from whom his whole family in heaven and on earth derives its name. I pray that out of his glorious riches he may strengthen you with power through his Spirit in your inner being, so that Christ may dwell in your hearts through faith. And I pray that you, being rooted and established in love, may have power, together with all the saints, to grasp how wide and long and high and deep is the love of Christ, and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God. Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.
Just remember that.....MEASURELESS.
No matter who you are.
No matter what you've done.
No matter what you haven't done.
No matter how healthy or rich or poor oryoung or old you are.
God's love for YOU is Measureless.
Wednesday, March 18, 2009
Surprises
There are lots of surprises that come with chronic illness. Some, if you can believe it, are actually good, while others, as you imagine, are not so good.
My biggest surprise, of course, was on December 4, 2000, when a team of doctors from the neurology department at the U of M came into my room and said, “We have a tentative diagnosis. You either have Myasthenia Gravis (MG), which is not curable, but there are treatments for it. Or, you have bulbar palsy, which is degenerative and terminal. We are leaning toward bulbar palsy.” Ouch.
Another kind of sad surprise is how quickly you understand who your true friends are. How much your church REALLY supports chronically ill people…But we’ve already been down that road too many times, and are not going back there. I had very few friends stick by me when I first got really sick. One even told me I was just being selfish. SELFISH! I was almost dead. Oh, how selfish of me. Please. People who REALLY love you are there for you, no matter what. Remember that. I sure do. And therefore, remember to let them know how much you appreciate them for standing by your side. Being ill is difficult, but so is being a care-taker!
An amazing surprise is how God prepared my husband ahead of time (when we didn’t even know each other) for every skill that he could possibly need when it came to taking care of me. As I said before, I came home in a hospital bed, and he slept on the couch for SIX MONTHS to take care of me during the night. I shouldn’t have been surprised, I guess, because my God is all-knowing, and He loves me, and my husband is an honorable man. He is a tremendous provider, care-taker, and the hardest worker I’ve ever known. He’s a cross between Daniel Boone and MacGuyver…he can hunt anything, live outside indefinitely, and probably make a rifle out of a few sticks and some chewing gum. He’s just a genius that way.
I think the biggest surprise of all is that I wouldn’t change anything. I wouldn’t go back and never get sick. Some of you may have your jaws on the floor…but I’m a different person now. I’ve been connecting with some old friends on facebook, friends who only knew me before I was diagnosed. They can hardly believe I’m the same person.
I used to be wound tighter than a drum. I was working at a trucking company making GOOD money. I had a powerful position, and I loved it. I loved going to the city and immersing myself in the city life. Chicago was one of my favorite places to go “clubbing” with a friend. I cursed like a sailor, drank too much, and smoked cigarettes. I was impatient, and didn’t have a close relationship with God. I believe I was still saved, but I was NOT walking the walk.
Now I truly realize it’s only because of God that I got through all this. God, and the prayers of His faithful. I am WAY more patient. Little things just don’t bother me…I don’t have the energy to waste worrying about them. I love deeply and quickly. I let people know how much they mean to me, because after all, that’s really what it’s all about. Relationships.
It’s not about who has the most. It’s not about climbing the corporate ladder. It’s not even about who can do the most good things…even for the Lord. It’s about talking to that friend in need. It’s about visiting that shut in. It’s about clothing the naked and feeding the hungry. It’s about visiting the sick and imprisoned. It’s praying when you say you’ll pray. It’s encouraging someone when they feel all hope is lost. It’s all about love. About being the hands and feet of Jesus.
If you know someone who is ill, or having a hard time, please make a commitment to show them you care…pick up the phone…send a card…bring a meal…let them know you are praying them.
For someone on the receiving end, it can make all the difference.
My biggest surprise, of course, was on December 4, 2000, when a team of doctors from the neurology department at the U of M came into my room and said, “We have a tentative diagnosis. You either have Myasthenia Gravis (MG), which is not curable, but there are treatments for it. Or, you have bulbar palsy, which is degenerative and terminal. We are leaning toward bulbar palsy.” Ouch.
Another kind of sad surprise is how quickly you understand who your true friends are. How much your church REALLY supports chronically ill people…But we’ve already been down that road too many times, and are not going back there. I had very few friends stick by me when I first got really sick. One even told me I was just being selfish. SELFISH! I was almost dead. Oh, how selfish of me. Please. People who REALLY love you are there for you, no matter what. Remember that. I sure do. And therefore, remember to let them know how much you appreciate them for standing by your side. Being ill is difficult, but so is being a care-taker!
An amazing surprise is how God prepared my husband ahead of time (when we didn’t even know each other) for every skill that he could possibly need when it came to taking care of me. As I said before, I came home in a hospital bed, and he slept on the couch for SIX MONTHS to take care of me during the night. I shouldn’t have been surprised, I guess, because my God is all-knowing, and He loves me, and my husband is an honorable man. He is a tremendous provider, care-taker, and the hardest worker I’ve ever known. He’s a cross between Daniel Boone and MacGuyver…he can hunt anything, live outside indefinitely, and probably make a rifle out of a few sticks and some chewing gum. He’s just a genius that way.
I think the biggest surprise of all is that I wouldn’t change anything. I wouldn’t go back and never get sick. Some of you may have your jaws on the floor…but I’m a different person now. I’ve been connecting with some old friends on facebook, friends who only knew me before I was diagnosed. They can hardly believe I’m the same person.
I used to be wound tighter than a drum. I was working at a trucking company making GOOD money. I had a powerful position, and I loved it. I loved going to the city and immersing myself in the city life. Chicago was one of my favorite places to go “clubbing” with a friend. I cursed like a sailor, drank too much, and smoked cigarettes. I was impatient, and didn’t have a close relationship with God. I believe I was still saved, but I was NOT walking the walk.
Now I truly realize it’s only because of God that I got through all this. God, and the prayers of His faithful. I am WAY more patient. Little things just don’t bother me…I don’t have the energy to waste worrying about them. I love deeply and quickly. I let people know how much they mean to me, because after all, that’s really what it’s all about. Relationships.
It’s not about who has the most. It’s not about climbing the corporate ladder. It’s not even about who can do the most good things…even for the Lord. It’s about talking to that friend in need. It’s about visiting that shut in. It’s about clothing the naked and feeding the hungry. It’s about visiting the sick and imprisoned. It’s praying when you say you’ll pray. It’s encouraging someone when they feel all hope is lost. It’s all about love. About being the hands and feet of Jesus.
If you know someone who is ill, or having a hard time, please make a commitment to show them you care…pick up the phone…send a card…bring a meal…let them know you are praying them.
For someone on the receiving end, it can make all the difference.
Saturday, March 14, 2009
For My Husband
Myasthenia gravis is not degenerative, per se, nor is it in and of itself terminal. It IS, however, challenging, can be, at times, life threatening. Sometimes I can't hold my son. Sometimes I can barely make it up the stairs, and Doug has to be right behind me in case I fall. He has been my earthly rock. He has not ONCE complained about my disease or what it has done to me. This story reminded me of his love for me, and I want the whole world to see it.
It's from Dennis Rainey.
For Better, for Worse
Do not merely look out for your own personal interests, but also for the interests of others.Philippians 2:4
I've been doing daily radio since 1992, and I can recall only one time when I was weeping so hard I couldn't speak. It was the day I interviewed Charlie and Lucy Wedemeyr.
At the age of 30, Charlie began experiencing the early symptoms of ALS, commonly known as Lou Gehrig's disease. A successful high-school football coach, he was given one to three years to live.
Even now as I reflect on our time with them in the studio -- with Lucy reading his lips and speaking for him -- the emotion is profound. They recalled a day when Charlie, his care becoming more and more demanding on his wife and children, whispered to Lucy, "Maybe it would be better if I just died."
Lucy took a deep breath, asked the Lord for just the right words, and said to Charlie, "We'd rather have you like this than not at all."
Having him "like this" has meant more than two decades of continual life support. It takes Lucy three hours to get him ready each day!
Lucy is a model of what we promised to each other in our wedding vows. In sickness and in health. For better or for worse. Keeping our covenant means more than avoiding divorce -- it means we'll be there, living out our love, no matter what.
Don't wait until you get in a dramatic situation where you're facing something like Lucy and Charlie before you cement your promise to care for one another through any circumstance. If you don't prepare for it today by submitting to the Lordship of Jesus Christ over your life and clinging to God's blueprints, you'll be unprepared when -- not if -- your crisis comes.
I love you baby. You have been my rock. Thank you for loving me just as I am.
It's from Dennis Rainey.
For Better, for Worse
Do not merely look out for your own personal interests, but also for the interests of others.Philippians 2:4
I've been doing daily radio since 1992, and I can recall only one time when I was weeping so hard I couldn't speak. It was the day I interviewed Charlie and Lucy Wedemeyr.
At the age of 30, Charlie began experiencing the early symptoms of ALS, commonly known as Lou Gehrig's disease. A successful high-school football coach, he was given one to three years to live.
Even now as I reflect on our time with them in the studio -- with Lucy reading his lips and speaking for him -- the emotion is profound. They recalled a day when Charlie, his care becoming more and more demanding on his wife and children, whispered to Lucy, "Maybe it would be better if I just died."
Lucy took a deep breath, asked the Lord for just the right words, and said to Charlie, "We'd rather have you like this than not at all."
Having him "like this" has meant more than two decades of continual life support. It takes Lucy three hours to get him ready each day!
Lucy is a model of what we promised to each other in our wedding vows. In sickness and in health. For better or for worse. Keeping our covenant means more than avoiding divorce -- it means we'll be there, living out our love, no matter what.
Don't wait until you get in a dramatic situation where you're facing something like Lucy and Charlie before you cement your promise to care for one another through any circumstance. If you don't prepare for it today by submitting to the Lordship of Jesus Christ over your life and clinging to God's blueprints, you'll be unprepared when -- not if -- your crisis comes.
I love you baby. You have been my rock. Thank you for loving me just as I am.
Thursday, March 12, 2009
Where Did It All Go Wrong?
You know, it's our fault the country is in the shape it's in. Ouch...I know. But it's true.
Remember when a handshake sealed a deal? Now we have prenuptuals and 600 page contracts.
Remember when we used to borrow a cup of sugar from our neighbor, not sue him?
Remember when we got a good wage for a hard day's work, instead of wanting more for working less?
Remember when your mom or dad would give you a good whooping if you were disrepectful or disobedient? Now it's child abuse.
Remember when our elders were treated with respect, and dignity? When we took care of them in their final years, instead of neglecting them and making them "someone else's problem?"
Remember when gay meant happy and marriage could NEVER have been considered outside the one man one woman thing?
Where is our honor?
Remember the concept that government is BY the people FOR the people?
PEOPLE, when did we stop fighting? I know some of you personally have not. But as a whole, we are pathetically inept at perseverence. Why do the radical liberals get their way so often? Apparently they want it more than we do. Apparently it's more important to them, and they fight harder and work longer to see that their agenda gets across. And I'm not talking parties here people, I'm not talking Republican verses Democrat, I'm talking AMERICANS.
We may not have a lot of money to fight City Hall, as it were. We may not feel that we have the "pull" of a celebrity. But almost all of us can write letters. We can send e-mail if we have computer. We can make our voices known. We can get off our high horses and get in the trenches and starting waging the war of the righteous.
I for one, am committing to start making my voice heard. I may be one voice, but I can no longer, in good conscience, sit on my hands and watch the world go to hell in a handbasket. It may be headed there anyway, but it won't be because I did nothing.
I am encouraging you to start making noise. The government works FOR THE PEOPLE. ALL the people. That's us. That's you. That's me! Don't give in or give up the rights that you have to protest, or to make YOUR opinions known.
Remember when a handshake sealed a deal? Now we have prenuptuals and 600 page contracts.
Remember when we used to borrow a cup of sugar from our neighbor, not sue him?
Remember when we got a good wage for a hard day's work, instead of wanting more for working less?
Remember when your mom or dad would give you a good whooping if you were disrepectful or disobedient? Now it's child abuse.
Remember when our elders were treated with respect, and dignity? When we took care of them in their final years, instead of neglecting them and making them "someone else's problem?"
Remember when gay meant happy and marriage could NEVER have been considered outside the one man one woman thing?
Where is our honor?
Remember the concept that government is BY the people FOR the people?
PEOPLE, when did we stop fighting? I know some of you personally have not. But as a whole, we are pathetically inept at perseverence. Why do the radical liberals get their way so often? Apparently they want it more than we do. Apparently it's more important to them, and they fight harder and work longer to see that their agenda gets across. And I'm not talking parties here people, I'm not talking Republican verses Democrat, I'm talking AMERICANS.
We may not have a lot of money to fight City Hall, as it were. We may not feel that we have the "pull" of a celebrity. But almost all of us can write letters. We can send e-mail if we have computer. We can make our voices known. We can get off our high horses and get in the trenches and starting waging the war of the righteous.
I for one, am committing to start making my voice heard. I may be one voice, but I can no longer, in good conscience, sit on my hands and watch the world go to hell in a handbasket. It may be headed there anyway, but it won't be because I did nothing.
I am encouraging you to start making noise. The government works FOR THE PEOPLE. ALL the people. That's us. That's you. That's me! Don't give in or give up the rights that you have to protest, or to make YOUR opinions known.
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