Sigh

So I'm stopping the cyclosporine. YAY! Then my neuro. says there's a drug I can try before we start the chemo one (IF my insurance will pay for it). YAY again! So I look up the drug, and I can't take it because I'm allergic to macrolides (azithromycin) and it says if you are allergic to those, don't take it. BOO!

My brain is mush. I'm frustrated. My doc is frustrated. My hubby is frustrated. But thankfully, the Lord is not. I had this on my bulletin board, and I'm not sure if I shared it before or not, but I need it right now, FOR SURE.


Strength for the Journey by Theodore Epp

From Strength for the Journey

Scripture Reference: Romans 8:31-39, Ecclesiastes 3:1-2



Lessons From Isaac's Birth



From the account of Isaac's birth there are many important lessons we should learn. Five are extremely significant.



First, God is in no hurry to work out His plans. He is never too late; He is always on time. Man frets and worries and is always in a hurry to work out his plans.



Second, God is Almighty. Nothing can hinder or thwart the outworking of God's purpose. Abraham was old and Sarah was barren, but these obstacles presented no difficulty to God.



Third, God is faithful. He promised Sarah a son. From the standpoint of human reasoning, it seemed like a foolish promise. However, the promise of God was sure because He is always faithful in keeping His promises.



Because God's word is absolutely sure, in times of doubt and discouragement we need to come to the Word of God to check our spiritual lives and to remind ourselves of His faithfulness.



Although we may not be able to understand how God can fulfill His promises to us, our attitude should be: If God says it, that settles it.



Fourth, faith is tested so it might be proven to be genuine. A faith that cannot endure trial is really no faith at all.




Fifth, God has a set time for everything. It is important that we learn this lesson well. God has an appointed time for accomplishing His will. Nothing is left to chance.



"To every thing there is a season, and a time to every purpose under the heaven: a time to be born" (Eccles. 3:1,2).

Update On Medicine and Stuff

Well, I have slept for FOUR nights in a row, at least 6 hours. Woot! Woot!

This disease is very puzzling however. My arms are weaker than they have been in YEARS. I still don't really have much stamina or energy. My breathing is much better, which is FANTASTIC, and obviously sleeping helps! : ) My emotional state is MUCH improved, so even though I'm not as strong as I want to be, I'm not like borderline suicidal. Which is always a good thing.

It's just crazy...I don't really know if the cyclosporine is helping, and the side effects are crappy... (charley horses being the worst). So what to do?? Another cool thing is that I haven't have pheresis in almost 6 weeks, and I haven't gotten any worse, so that's awesome.

I have to get blood work done tomorrow morning for the cyclosporine levels, so I guess we'll see then if it's measurable in my blood, and it if IS, if it's worth continuing. Although we've spent so much stinkin' money on it....

I've also just started sneezing my fool head off, and blowing my nose every 2 or 3 minutes. I'm PRAYING it's just a ridiculous allergy attack! Well, I guess that's it for now....we'll see what the blood test says and go from there.