Well, I have slept for FOUR nights in a row, at least 6 hours. Woot! Woot!
This disease is very puzzling however. My arms are weaker than they have been in YEARS. I still don't really have much stamina or energy. My breathing is much better, which is FANTASTIC, and obviously sleeping helps! : ) My emotional state is MUCH improved, so even though I'm not as strong as I want to be, I'm not like borderline suicidal. Which is always a good thing.
It's just crazy...I don't really know if the cyclosporine is helping, and the side effects are crappy... (charley horses being the worst). So what to do?? Another cool thing is that I haven't have pheresis in almost 6 weeks, and I haven't gotten any worse, so that's awesome.
I have to get blood work done tomorrow morning for the cyclosporine levels, so I guess we'll see then if it's measurable in my blood, and it if IS, if it's worth continuing. Although we've spent so much stinkin' money on it....
I've also just started sneezing my fool head off, and blowing my nose every 2 or 3 minutes. I'm PRAYING it's just a ridiculous allergy attack! Well, I guess that's it for now....we'll see what the blood test says and go from there.