Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
Saturday, August 27, 2011
Two Down, One To Go
Then I get word that they are getting ALL new machines, and getting rid of the old ones. Doug was immediately like: what are they gonna do with the old ones? I could see his wheels turning.
Seriously, though...how cool would it be to have my very own pheresis machine, and get a nurse to come here and do it in my own home? One can dream....
Anyway....I'm pretty wiped out. DRAINED you might say (ar ar, pheresis humor). The bruise on my arm from Wednesday is pretty nasty, and my whole arm still aches. But alas, comes with the territory. This pic is from today, 3 days later.
So that's it for now....rest today and tomorrow, and then Monday is the last treatment til the middle to end of October. Yay for that.
Saturday, April 10, 2010
Beef and Bruises and Bathrooms
Purty, huh.
My vein blew Wednesday, but I had to go back for treatment yesterday...the vein held, but holy bruise Batman! I'ts creeping onto the top of my arm and everything. It's a bit tender! I need to ice it and hopefully it will be okay for my last treatment Tuesday. Last for a few weeks anyway, unless I start the Rituxan before then.
Finally....drumroll please.....Jacob is going potty on the big potty!!! Doug's mom watched him while we were in Ann Arbor yesterday, and she just sat him on the potty seat and he went! And he kept telling her when he had to! Just like that? So last night we get home and you'd think he'd go for me? NOPE. Not until the third time he told me he had to go anyway!! And today he's only had one "oops" and he was outside working on the truck brakes with Daddy, so he obviously had more important things going.
Shawn told me this morning when they brought the cow over that he had been watching the other kids in daycare use the potty, and understood that they didn't wear diapers anymore. Sweet!!
So that's what's new in my life. What's new in yours??
Love Changes Everything by Micah Berteau - A Book Review
If you're not familiar with the story of Hosea and Gomer in the Bible, it's really quite shocking. Here's my brief synopsis...
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WELCOME SITSTAHS! I'm Kerri, and I am so excited and honored to be today's featured blogger! My dear friend Joanna introduced me to ...
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If you have made mistakes, there is always another chance for you.You may have a fresh start any moment you choose,for this thing we call ...
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For my type of Myasthenia Gravis (MuSK+), there really isn't remission. Many people with AChR+ MG can have a thymectomy, and boom, remi...