Monday, April 25, 2011

Feeling A Bit Better!!!

I am feeling a bit better than yesterday. Well, A LOT better than yesterday....Yesterday was pretty rough. I'm hoping and praying that this is the beginning of a long upswing.

One thing that is so difficult is the constancy of this disease. It doesn't go away for Easter. It doesn't stop when you get a migraine. It's still there when you get sick (like a normal "sickness" like a cold, for example). My MG never takes a break. Never leaves me alone. It's always there.

Germs aren't just germs; they're deadly microorganisms for the chronically ill.

Staircases aren't just staircases; they are, at times, insurmountable obstacles.

Hospitals aren't just buildings; they are the stuff of life and death. Of dreams and nightmares. Of cures and killers.

Imagine carrying a 50 pound backpack with you every moment of every hour of every day. You might be okay for an hour, a day, maybe even a week if you're strong and in good shape. But try a month. A decade.

It gets in the way of everything. Just think about it. It's not like you can't live with it, but it just changes everything. That's the life of people with chronic illness.

9 comments:

Pam said...

oh my goodness, I just wrote you a very long comment and vented but I guess you were not supposed to get that one since when I pushed the publish button it said cannot publish...so with that said I am sorry you are hurting, I am having one of those horrible no good very bad rotton days,...remember that book? I read it to my kids many times!
love you Kerri Hang in there!

Peter Waite said...

I hope you continue to get better. Thanks for all your awesome comments on my blog :)

Kim @ Stuff could... said...

These words mean so much "It's not like you can't live with it, but it just changes everything". That is a great description of life with a chronic illness....I hope you do get better.

CoconutPalmDesigns said...

I'm so sorry you had such a bad day yesterday. I hope tomorrow is better than today and so on.

Love you!

Cheers :-)
- CoconutPalmDesigns

Karen Mortensen said...

Glad you are feeling better. Too bad you can't just tell MG to take a vacation for a week.

kendra22 said...

follow your blog and thanks for the posts that you honestly put out there. God Bless you on this journey we call life !!

Geena said...

Hi ... I have been reading your blog. Sorry you are in pain and hope you get more good days soon. I was wondering though if it makes it worse, writing about all of the things that bother and hurt you?

You must look back on your blog and see a lot of pain. I'm a little bit of a cheeseball, but I find that it helps to burn the bad memories (literal bonfire). On the blog I will try to "immortalize" the memories that I want to keep in my system. We do need to vent after hard days, but burning it releases the tense emotions & energies ...

Sending healing energies your way. Really don't know what its like to live with a chronic illness, hang in there (I think you're doing a great job!)

Love & Light



Geena

Geena said...

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Kerri said...

Thanks everyone....
Geena, thanks for reading! I appreciate it! And actually, it DOES help me to vent. It's kind of like writing a letter to someone that you'll never send when you're really angry...I have to get it out, and my blog is the way it comes out. I try to stay upbeat and positive as much as possible, but I would not be human if I didn't describe the bad with the good.
I appreciate your comments!