I am feeling a bit better than yesterday. Well, A LOT better than yesterday....Yesterday was pretty rough. I'm hoping and praying that this is the beginning of a long upswing.
One thing that is so difficult is the constancy of this disease. It doesn't go away for Easter. It doesn't stop when you get a migraine. It's still there when you get sick (like a normal "sickness" like a cold, for example). My MG never takes a break. Never leaves me alone. It's always there.
Germs aren't just germs; they're deadly microorganisms for the chronically ill.
Staircases aren't just staircases; they are, at times, insurmountable obstacles.
Hospitals aren't just buildings; they are the stuff of life and death. Of dreams and nightmares. Of cures and killers.
Imagine carrying a 50 pound backpack with you every moment of every hour of every day. You might be okay for an hour, a day, maybe even a week if you're strong and in good shape. But try a month. A decade.
It gets in the way of everything. Just think about it. It's not like you can't live with it, but it just changes everything. That's the life of people with chronic illness.