Monday, April 4, 2011

Thank God For Internet

I am telling you. If it weren't for the internet, I would have already lost what's left of my mind. (And there ain't much left, let me tall ya.) I have gotten some of the most precious e-mails and comments on my blog. And I appreciate them all more than you know.

This is my social life. I don't go out. I don't have a lot of friends. I don't see the ones I do have very often. I don't see my family often enough. So I get most of my warm fuzzies from all of you. And a lot of encouragement and support that is desperately needed.

I don't hesitate to tell you that I am struggling! Oh my GOSH! The frustration of the administrative part of being chronically ill is enough to drive anyone over the edge. Add chronic illness itself, a 4 1/2 year old the Energizer Bunny couldn't keep up with, and a dog with a cough... Hey, that sounds like the beginning of a bad joke... A sickie, a coughing dog and the Energizer Bunny walk into a bar... Just kidding.

So I'm still waiting to get a referral to get into the neurologist at the place closer to home where I'm going to have pheresis, so I'm going to Ann Arbor Thursday for a treatment so I don't completely crash again before I finally get the arrangements made. I swear. Something so simple and people make it so difficult. Especially people who don't even know what I'm talking about, and yet talk to me like I'M the ignorant one. It's a good think I don't have any energy, because someone I talked to on the phone this morning would have my handprint on her face.

That's it for today....uplifting, I know. : ) Sorry...I'll try harder tomorrow.


Margaret said...

I hear ya!!!!!!!!!!!! I am so tired of dealing with doctors office's, treatment places, drug companies and insurance companies. I feel like I need to hire an assistant in order to get everything done on top of my job and not feeling good. Oh well in time it always gets done.

Karen Mortensen said...

I hear you. Why can't they make things easy on everyone. Good luck and it will work out.

Patty Ann said...

I think you are doing great!! I am not sure I could deal with all the frustration. I would probably yell at someone and they wouldn't see me for a month!! Remember that lady that got mad at me?? I found out today that she is going to my church. Life is probably more interesting than I would like it to be. Give that energizer bunny a hug or two and make sure he knows he is amazing. They grow up so fast!! Hope you feel better after your trip and you have more energy to deal with all the red tape!

CoconutPalmDesigns said...

I'm right there with you where the internet is your social life. I get seriously upset when anything goes wrong with my internet.

As for the people causing problems unnecessarily, would you like me to come up there and slap them upside the head for you? I'm very good at fighting other people's battles - not so good at fighting my own.

Cheers :-)
- CoconutPalmDesigns

Rachel said...

My job offer still stands, if you need an administrative assistant I'm still available. Keep in mind my typing skills aren't as sharp as they used to be!!!

On the serious side, if we don't fight for ourselves, no one else will. Keep fighting, it all works out in the end!

***Glad to hear all were WALKING into the bar!!!