So. I LOVE the new neuro. He's SO nice. He's willing to take on my case and we decided to keep Dr. Teener as my "head" neruo., but we are going to follow-up with Dr. Sullivan. He's warm, kind, professional, and seems to know what he's talking about. Go figure! Also, instead of seeing both an ENT and a pulmonologist, he feels confident that a pulmonologist at St. Mary's will be capable of handling both my trach and lung issues. (Hallelujah for that!) So that means everything except my shrink (who manages my anti-depressants, anxiety and sleeping meds) and PCP will be at St. Mary's. Whoo-to the Hoo! It's so much better having most of my medical stuff in one place.
THEN, Dr. Sullivan suggested having pheresis Monday, Wednesday and Friday, then off for four weeks. Then Monday, Wednesday, Friday, and off for four weeks, and so on. Typically, plasmapheresis is done over a 9 day period, 5 times. Most of the time it's done in-patient, but it can be done out-patient if you have a port, fistula or catheter. I'm pretty sure my veins will hold up for three treatments in one week if they have 4 weeks in between to recover. I'm excited. This doctor seems to get me, and thinks we may be able to tweak my CellCept should this not work. But I think it will.
That, and finally sleeping at night....it's all good!
Oh, and I AM going to check out a new church tomorrow. So if you could just say an extra prayer to bind the devil from giving me a migraine....thanks!