Ouch. That's all I'm sayin'. Ouch. When you have fibromyalgia, laying on any hard surface is brutal. When you have Myasthenia, laying flat on your back is nearly impossible. And when you're in a tiny room with a man poking your fibro-hips to "see if you're in the right spot"...well. Let's just say I'm glad I didn't curse.
Bone scan dude: {poking left hip}
Me: {automatically moving AWAY from the source of the pain} "OW!"
Bone scan dude: {poking away} "Don't move."
Me: {automatically moving away from the pain again} "OW!" {a bit louder}
Bone scan dude: {poking, poking, poking} "Don't move! I need to see if you're lined up right."
Me: {through gritted teeth and clenched fists so as not to knock said bone scan dude to the floor} "I have fibromyalgia and that REALLY FRICKEN HURTS!!!"
Bone scan dude: "Oh. Well hold still."
I'm tellin' ya. Then he was poking places I'm not sure he was supposed to be poking but I couldn't tell because he had to "make sure my pelvis was lined up with the lights." And I guess my "fluffiness" prevented him from doing so visually. Either that or he was a total perv and I missed it. I was too busy trying to breathe and not pass out from the pain!!
On the good news front: I am getting a referral to a fibromyalgia specialist in Grand Rapids (hopefully SOON!!) to see if I can get in BEFORE my MAY 3 evaluation appointment at Mary Free Bed. We shall see.
Secondly, only 69 days til North Carolina!!! Woot! Woot!
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
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