Tuesday, June 12, 2012


This amazing post is brought to you by Felicia Parker, mom to Seth, who is 16 and has MG.  He recently had a thymectomy (removal of the thymus gland) because of his MG.  June is National Myasthenia Gravis Awarenss Month, and Felicia is doing an AMAZING job of spreading the word.

I couldn't copy the graphics because the picture would have been to small to read, but here are the words:


What if you wanted your eyes to open, but they couldn't?
What if one or both of them would only open a little,
no matter how hard you tried?
What if everything you saw was double, or blurry?
What if you were hungry, but chewing became difficult,
or you choked on your food because you couldn't swallow?
What if you wanted your hand to open,
or your legs to walk,
or your body to hold you up and it just wouldn't?
What if your speech became slurry, 
and people thought you were drunk or on drugs,
when you're not.
What if it didn't happen all the time,
but when you least expect it?
Would you go to the doctor's?
What if your doctor didn't know what was wrong with you?
Would you go to another one and another and so on and so forth...
What if a neurologist said, "You have Myasthenia Gravis."?
What would you do if you, or your son, or daughter,
or your mother or your father 
were diagnosed with a rare, neuromuscular, autoimmune disease
that no one has ever heard of, and was completely incurable?
What would you do?

Thank you Felicia, for letting me share this!!

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