Saturday, June 18, 2011



I had an echocardiogram last Wednesday, and everything "seems" okay. I have to just wait and see. Which is like TORTURE to me. I shouldn't have asked any questions, because she said I have a leaky valve, but not which one, and told me the number, and a number for my pressures...but not which pressures...and everything overall looked OK. Partial information is worse than none. Now I'm going crazy trying to figure out what's what. And it's making me lose my mind. Slowly.

I also got my Shake-A-Lator VEST. It's bizarre. It reminds me of those old black and white TV shows where they show the people at the "fat farms" or "spa" or whatever with the belt around them that shakes them senseless! It's like going over a super bumpy road for 20 minutes. CRAZY. But it's already helping me get rid of stuff in my lungs. Now we just pray the insurance (MEDICARE) will cover its 80%, because it has a pretty steep pricetag.

I'm waiting to hear about a cough assist machine, and I have a pulmonary function test on the 29th. My goodness. Appointments like crazy! Then of course, I have my 3 plasmapheresis treatments July 6, 8 and 11, and thank the LORD two of my docs were willing to work me in on those days; one being Dr. Lovy, the best pulmonologist in the WORLD and the other is my endocrinologist, Janette, who is the BEST P.A. in the world!!! They are all at At. Mary's, which is an hour from here, so making a trip, especially for a 15 minute diabetic check up is out of the question with gas at $4.00 a gallon. So thanks so much to those two docs for helping us out!

Other than that....I never did get Jacob's cold all the way, HALLELUJAH, and today, I got up at 7:30, had breakfast (thank you hubby), my coffee, and then Doug took Jacob to "throw hay" or something like that. Everyone was so impressed with Jacob. How grown up he is for a 4 year old, how well he speaks, how well behaved he was...I guess I'm not doing such a bad job after all!

But while they were gone, I swept the mudroom AND stairs (with a BROOM!), sorted and washed 3 loads of laundry, did the dishes and did my 20 minute Shake-A-Lator treatment. GO ME!

Don't forget, June is National Myasthenia Gravis Awareness Month!

Stay tuned next week for the start of a series of reviews on Reflecting Him, a Bible study by Carla McDougal.


Rachel said...

Thanks for the update! Hooray for you for getting so much done this weekend! Sounds like all is going well at Green Acres, it's great "Oliver" has such a good helper! You can be proud of that beautiful boy of yours...

Renee Ann said...

The Shaking Belt sounds like a great innovation. So glad all the treatments give you the strength to live life and raise your son. Blessings!

Kim @ Stuff could... said...

I hope the shaking does work. Medicare better pay for it, since this health stuff is so $$$....Good for all the work you got done!

Becky Jane said...

Grateful you received your 'Shaker'. Hope it continues to clear your lungs!
Hugs, Becky Jane