Today I am realizing how blessed I am to be part of a group of people called Myasthenics. I have Myasthenia Gravis. It has changed my life forever. Many of the changes I do not like. In fact, many of them I LOATHE. I hate that I cannot work. I hate that I cannot pickup and go wherever, whenever I want to. I hate that I can't roll around on the floor with my child. I hate that I can't grab an overnight bag and spontaneously go somewhere for the night.
But you know what I LOVE? I love that God loves me so much, that He could take a horrific disease and bless my socks off. I have been able to support and encourage a few people along the way. For a person like me who wants to help the entire world, that's a really cool thing!
I have met people that have indelibly changed my life. I wouldn't have met them if I didn't have this disease. (Well, nothing is impossible, but probably not). Some of the people that I love and cherish most on this earth I have never met in person. But they KNOW me. And I KNOW them. And I know that I could call them night or day and they would listen, and understand.
There is a special and immediate bond with people you have something in common with, especially something that is a huge part of your life. For example, I feel an immediate bond with other Christians. So for the people that are Christians AND have MG....well, we are just plain family.
I have changed a lot as a person too. I value so much more. I value so much less....it just depends on how you look at it. The things that used to drive me crazy, raise my blood pressure, make me jump up and down and curse and turn red and lose my mind don't even cross my radar now. And the things that are really IMPORTANT in life....important, not URGENT....they are the things that matter.
My husband.
My son.
My family.
My friends.
My God.
I would challenge you today, ill or not, to think about what your last few weeks have been like, what your next few weeks will be like, and what you're doing that will REALLY matter 5 years from now.
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1 comment:
I love this post. Such great thoughts. I feel the same way about my Fragile X. I hate it but at the same time love it.
I like your new blog design.
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