Hey everyone!
I am thrilled to say that surgery went as well as it possibly could have. I didn't have any trouble coming out of the anesthesia, they didn't need to figure out a breathing tube while they were working on my only airway while I was "under" (something they had been a bit concerned about; what if they took out the trach and didn't have a viable airway while they worked? Since my vocal cords are scarred shut, they couldn't intubate me from above.... I just prayed a lot and figured, oh well, I'll be sleeping, so it's not like I'll KNOW if they have a problem!) No excess bleeding....
The only bummers were 1. the doc used silver nitrate instead of cauterizing....I didn't ask why, I just wonder if maybe the cauterization would somehow have caused more inflammation, thus increasing the likelihood of granulation tissue sooner rather than later, and 2. I had to stay in short stay (outpatient) for FOUR hours AFTER an hour and a half in the recovery room, because of my sleep apnea. And I didn't even get to be on the side with "my" nurses (the ones I have for pheresis).
My surgery was Thursday, Friday I was still a complete mess (like weak-tired-in pain-run-over-by-a-bus-kind of mess). Slept til 10:45, then laid down again for a few hours in the afternoon. Yesterday was pretty decent, and today, other than the scalding, blistering, raw-hamburger-ishness of my stoma from the silver nitrate, I'm doing pretty good! Considering all the crap I have wrong with me (MG in particular) I think I'm doing pretty darn good!
Have a dentist appointment Tuesday and pheresis Wednesday and Friday, then I think I'm actually done til vacation. I've had more appointments, tests and procedures this calendar year...something like 28 or 30 all told. Geez. Kind of hard to have a life, raise a child, homeschool said child, run a business, be a wife and homemaker when you're always getting poked, stabbed, or prodded by something or someone!
So, that's this week for me. How about you? Anything fun planned?
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
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