The Rituxan was unsuccessful. After they FINALLY got started, I ran for about an hour and a half when my throat started tickling. No problem, I read that can happen and not mean anything. They my eyes started itching. So I told the nurse. As she was contacting a doc there, I started having difficulty breathing. Allergic reaction. Big time. So they stopped the drug, gave me a bunch of stuff and I was ok.
They called my neurologist. I wanted them to try again but they wouldn't; my neuro agreed. He said he wants me to do pheresis for now while he figures out what to do. I am e-mailing him next. I wanted to go right to pheresis then, since we were already down there, he said no, I'd had enough trauma for the day.
I am upset.
I am angry.
I am frustrated.
I am stunned.
I was so sure this was IT.
I'm going to see if Dr. Teener will admit me to the hospital, give me a buttload of preventative drugs and try again.
Back to square one. I can't believe it.