This is me when I can smile, and have control of the muscles in my face. I can lift my cheeks to smile, you can see my eyes are open, bright, and I feel okay.
Myasthenia Gravis causes facial weakness. When I feel this way, my arms and legs are extremely weak. I need supplemental oxygen so I don't lose more brain cells. I can't breathe deeply enough to get enough oxygen to my brain. My neck is weak and it's a real chore to hold my head up. If I didn't consciously hold it up with the muscles in my neck, it would simply tip over. Which has happened, especially in the van. We go around a corner, and if I am weak, I will tip the way we are turning, and I am not strong enough to right myself.
I can't lift anything. I can't hold anything in my hand because my grip is weak.
Most of the time my face doesn't look this bad, and people assume I am fine.
I am not fine.
I will never be "fine" again, unless and until a CURE is found for MG. June is National MG Awareness Month, and I will be posting as much as possible to raise awareness. I am not afraid to be bold, to show you my MG weakness, to be vulnerable and lay my soul bare.
WE MUST FIND A CURE FOR THIS ILLNESS BEFORE WE LOSE MORE LIVES.