Monday, January 16, 2012

OUTRAGE!!!

Okay, a friend of mine alerted me to this....this....complete and total lack of humanity and unfortunately, a trend I see coming down the pike.

Please go to this link and read the story.  http://www.wolfhirschhorn.org/2012/01/amelia/brick-walls/

This is a REAL family with a daughter who needs a kidney transplant.  However, she was told by the Nephrology department at the Children's Hospital in Philadelphia that her precious baby girl was, and I quote, "She is not eligible because of her quality of life---Because of her mental delays."

WHAT?  I hope and pray that every single human being who reads this is as outraged and sickened by this as I am.

Do we still live in AMERICA???  Oh. My. Flippin". WORD!!!!

Are you KIDDING ME????

Even though her family would donate the kidney so that she doesn't have to take a space on the transplant list (reserved for someone perfect, apparently).....  The hospital WILL NOT DO IT.

What's next?  You can't go on the transplant list because you're not a college graduate?  You don't make enough money?  You have a felony on your criminal record?  You have BLUE YES???

This is an outrage beyond anything I've ever seen.  This child is THREE years old.  She COULD have the rest of her life ahead of her...but PROTOCOL is stopping her from having a life saving transplant.

Thank you, Obamacare.  I am so angry I could just spit.  Don't for one minute think that this couldn't happen to YOU or YOUR child.  Because it can and it will.  IF we don't stop it.

First, you can sign this petition to show your support for the family, and your disdain for the hospital.

Secondly, here is a link to the governor's office:  click here and fill out the form to send him an e-mail.  His name is Tom Corbett, and wanna know what his "platform" is??  "Children first."  Mmm-hm.  I swear.  The phone number to the governor's office is Phone: (717) 787-2500.

Third, you could write a letter to the Secretary of Health (or call the number above), Eli Avila at
Governor's Office
225 Main Capitol Building
Harrisburg, Pennsylvania 17120
Phone: (717) 787-2500
Fax: (717) 772-8284

Let's FLOOD the office with calls and emails.  This little girl has a right to medical treatment.  I mean, QUALITY OF LIFE???  What about all the sociopath serial killer rapists on death row?  THEY could get a transplant, and on OUR dime!!  I hope you are as upset about this as I am.  Politics aside, right is right.  And this is NOT right.

PLEASE do SOMETHING on this child's behalf.  Thanks.

update
Full Statement from The Children’s Hospital of Philadelphia:

To our Facebook community:

We hear you.

We feel and understand your frustration, but we are unable to comment publicly on individual cases.

Each child is unique, and our goal is always to provide the best possible medical care for each individual patient.

Please know that CHOP strives to partner with families and make appropriate decisions based on input from many sources, none more important than the patient’s family.

Anything less would be completely inconsistent with the values we work to uphold every day.

We are also taking action to review all existing policies to make sure that they reflect the core values we live by, including our deep commitment to not discriminate in any way.

The Children's Hospital of Philadelphia does not disqualify potential transplant candidates on the basis of intellectual abilities. We have transplanted many children with a wide range of disabilities, including physical and intellectual disabilities. We at CHOP are deeply committed to providing the best possible medical care to all children, including those with any form of disability.

The Children’s Hospital of Philadelphia is an institution. But more important, we are a team of men and women whose life’s work and greatest passion are the care of all sick children and the support of their families. To be entrusted with the care of these children is a privilege, one we take with the utmost seriousness."
 
This information was passed on to me, but I still believe Amelia's mother....I guess time will tell whether or not Little Amelia gets her new kidney! 

1 comment:

Patty Ann said...

Kerry, THAT IS terrible!! I don't understand those doctors!! However, going through problems with Miracles specialist makes me wonder if many of them are like this!!I will keep them in my prayers.