Emotions have been running high. This last week has been a time of deep reflection for me and some decision making for our family.
We are looking into much more aggressive treatment for the MG. Rituxan is a chemo drug used for Non-Hodgkin's lymphoma and RA. It can work really well, but it's really expensive and has scary side effects. We talked about this before, but then it seemed like I was getting better again for a while.
I have been doing way too much, trying to act like healthy person and do the things healthy people do. I need to accept my weaknesses instead of ignore them, because ignoring them sent me right to the E.R.
Tomorrow is another pheresis, then again next Tuesday. The approval process for Rituxan takes a while, so i won't be for a little while yet. Prayers are definitely appreciated.
NOW.....Better late than never....Rachel from This Crafter's Yarn won the CSN giveaway!
I let her know on time...almost! Rachel is a fairly new bloggy friend who also has MG! Congratulations Rachel!