A Few Grateful Words

Wow.  I have some serious "thanks" today....

First of all, I'm thankful that my pheresis went so well on Friday, and am praying it goes just as well today, if not better than Friday!

I also want to thank the many friends and family who have generously donated to my Give Forward page that Jen Walsh so lovingly created for my family.  I was overwhelmed she did that, and I'm overwhelmed by the generosity of my loved ones.

Thank you to all of you who pray for me, for my family, and for my other MG friends.  Please continuing praying for a cure.

I'm so, so thankful to Karen and Kerry, my cousins and friends, who haven given my son a gift I could never give him....They are camping, and they took my son, so he can have 5 days of being a "normal" little boy.  Playing with kids outside, on a playground, fishing, swimming, running around and playing tag...all the things I cannot do with him.

Even after the first night of him waking up 4 times, screaming, being exceedingly difficult, they are keeping him! (I haven't dared ask about last night because I have a treatment today and I don't want to be stressed out.)  I told Karen I was going to come and get him yesterday because I didn't want him ruining their camping trip by them not getting any sleep...and she insisted he stay.

That touched my heart in a way that few will ever understand.  My heart breaks at the things Jacob has to miss out on because of my illness.  Even as I write this the screen is blurred by my tears.  The gift that Karen and Kerry are giving my beautiful child is priceless.  Thank you girls.  I love you both from the bottom of my heart.

And thank you to my mom and dad, who are always willing to bail me out.  They were going to totally rearrange their plans so that they could take Jacob today if need be.  I had told them they didn't need to watch him, so they made plans to do other stuff....and then yesterday, I call my mom in a panic because I'm thinking I have to get Jacob and find somewhere for him to go...and she calmly says, "You just bring him here, honey.  We'll figure it out."

I'm so thankful to have parents who love me so much.

There's so much more, but I can't really see to type anymore, and I have to get going for my treatment.  Thank you to all of my wonderful friends and family...you ALL are a gift from God.

The Power In Prayer

Once again I am in awe of how, at times, God moves so quickly when I pray, and ask others to do the same. 

We have the blessing of Love INC coming in August to help scrape and paint our house.  We live in a pre-1900's farmhouse, and it has its original wood siding.  We try to paint every year, but with my health, it's just not possible.  I cannot help Doug very much, and we don't have any family nearby.  So I was so thankful, and so blessed when I got an email saying that Love INC's Skills Ministry would be doing this.  Thank you Lord!

I always worry about Doug trying to do too much.  He always DOES do too much anyway, but between the animals, Jacob, and my health, not to mention a full time job where he's the boss... there's not a lot of time for other things.

So Doug and I were both so thankful and happy that this was going to be done.  But Doug needed to replace a few boards.  So he did, and then he found dry rot underneath.  I'm not sure what that is, but I know it's bad, and I know it needs to be replaced.

Well, I asked my facebook friends to please pray that SOMEHOW the finances would come in so we could take care of this.  We prayed.  I've been working my fingers numb trying to make jewelry to put on my site to sell to go towards the at least $3000.00 we will need to do this.

And then I get an email from one of my fellow MG'ers whom I had the pleasure of FINALLY meeting in June.  She asked if she could set up a page for me and my family on Give Forward's website.  I was like, you would do that for ME?  She is amazing. SHE has MG, she has 2 children, a husband, a home to care for, and she is a very strong advocate for people with MG everywhere.  She's amazing, and she did this for me.  I am humbled, grateful, and so thankful that God hears and answers prayer.  You can check out her wonderful page for me at Give Forward's website http://www.giveforward.com/rallyforkerri.

God is good, all the time, even when things are tough.