Magnificent Milestone

Yesterday was a HUGE day for me.  Not because I don't feel very good (Jacob shared his germs with me).  Not because it was Sunday (I missed church).  It was a big, wonderful, magnificent day in which I reached a major, magnificent, monumental, milestone.

After 17 years and 9 months, I am *completely* OFF of CellCept.  CellCept is the medication I take for the Myasthenia Gravis.  I started it in February of 2001 and have been on it ever since.  The only time I *didn't* take it was when I was pregnant with Jacob.

CellCept worked miracles for me.  It was the only MG med I had taken that worked.  Between that and Plasmapheresis, I stayed alive.  I didn't have side effects with CellCept as long as I took it with food.  I've had friends that had catastrophic side effects from this medication.

CellCept is a drug that suppresses the immune system.  With MG, my own immune system attacks the connection between my nerves and muscles (the neuromuscular junction).  So by taking this medication (originally a drug for organ transplant patients to help prevent rejection), the MG symptoms were slightly abated.  However, it was NOT a cure.

I am still NOT cured.

I am still NOT in remission... I have simply swapped out medication and a grueling procedure in which 150% of my blood volume was taken out, separated, put back together and put back in my body (plasmapheresis) for a foot bath. 

Yup, I said foot bath.  But not any foot bath... The IonCleanse by AMD.  This machine gave me the miracle I have been praying for since I had my first symptom in July of 1996.  IF I use the IonCleanse by AMD three times a week, I don't need pheresis, and I've been able to get off of Prednisone (after 17 years) and now off of CellCept (all WITH my neurologists's consent).

I was fortunate enough to be part of a very small, informal study in which the IonCleanse by AMD was provided for me to use as a possible MG treatment.  It is non-invasive, there are no chemicals in it, it is completely safe, and AMD has a perfect safety record. Click HERE to read the white paper on the study.)

As a side note, since using the foot bath (November 10 will be 2 years since my very first one), I have not needed plasmapheresis for 21 months!!!  

I'm so thankful to God for bringing this machine into my life.  My quality of life is SO much better.  I can drive again.  After almost 15 years of being primarily home bound, I can go places with or without Jacob, without my husband.  Nothing. Else. Has. Changed. In my medical regiment.  If I over do it, or if I miss a bunch of treatments, I get more symptomatic.

And I'll tell you before you even check out the link, it's *expensive*.  Sure, you could find something cheaper; but please remember, you get what you pay for.  A cheap, Chinese knock off has NO oversight... There is NO ONE making sure it's safe.  It hasn't been tested.  It's basically a glorified battery charger.  (We ARE talking water and electricity here)... And no, I don't work for AMD.  I'm not a salesman.  I just want everyone to know what a miracle this machine has been in my life.

AMD has the patent on this technology.  As I said, they have a 100% safety rating.  The people who own the company are good people.  If you call the company, you may very well talk to one of the founders.  They aren't pretentious.  They are good, decent people who want to help others.

Anyway... I just wanted to share my amazing news with everyone, and thank God for seeing fit to bring this machine into my life.

NEVER give up.  I went 20 years with this disease controlling my life.  But people were praying for me every. single. day.  I don't know why it took 20 years.  And I don't care.  The IonCleanse by AMD has given me my life back, and I give God all the glory!

Be blessed y'all!

Click HERE to go to the AMD website. (We in the study all used the Solo machine.)

Today is Monumental!!

Why, you ask? Well, it's Martin Luther's birthday.  (No, not Martin Luther King, just Martin Luther. If you don't know who that is, ask a Calvinist. LOL) That's lovely, but that's not why this day means SO much. 

And, on this day in 1943, Japanese troops evacuated Guadalcanal, which ended the epic WWII battle on the Solomon Islands in the Pacific.  But that's not it either. 

On February 9, 1951, the St. Louis Browns signed pitcher Satchel Paige, aged 45.

But what is REALLY significant, in MY life, on THIS day??

It has been ONE YEAR since my last plasmapheresis treatment!!!!

Now if some of you don't know what plasmapheresis is, let me tell you.  (Warning, if you're squeamish, skip to the next paragraph!)  I used to have to go to the hospital two times, a day apart, every four weeks to have pheresis.  They would stick a large bore needle (like the size of a fork tine) into each arm.  Out of one needle they would draw out 150% of my blood volume, and run it through a machine (like a fancy centrifuge), spin out my plasma, add albumin synthesized from human plasma, and put my blood back into my body.  I have had this procedure done over ONE THOUSAND FOUR HUNDRED times in the last 17+ years.  Yes, 1,400!  If you're never had this, or dialysis, or anything like this, it's truly hard to imagine how hard this process is on your body.  And I had to have it that often just to *function*.
You can read more about plasmapheresis HERE.  (At the time of the post I could go *maybe* up to six weeks, but my function would decline.)

So how on earth have I managed to go an entire year, when normally I would have had at LEAST 26 of these treatments, you ask?  Let me tell you!!!  I was blessed, absolutely, 100% BLESSED to be part of a small, private, *INFORMAL* study by Debbie Norman with a machine called the IonCleanse by AMD.  (Click HERE to see the results of the study.)  Debbie asked ME to be part of this study.  The Lord led her to ask me, I just know it.  Well, I DO know, because I had the chance to meet her and ask her why!  Jacob said, "So we're going to meet the lady who gave you the keys to the lock to open the door to the rest of your life?"  Sigh.  I LOVE that boy. 

I thank God every single day for this machine that has transformed my life.  My miracle.  I cannot thank Debbie enough for listening to God's whispers when it came time to find participants for the study. God is GOOD.

So what is the IonCleanse by AMD you ask?  Well, it is an ionic footbath. Mmmm-hm.  That's what I said.  A foot bath.  You put your feet in a tub filled with good ol' tap water, put something called an array in the tub, connect it to the computer (machine) and plug it in. YES, we're talking water and electricity here.  That is why I can ONLY recommend the IonCleanse by AMD.  It has a 100% safety record, and it has been tested, and tested, and tested.  You can buy a knock off made in China for a LOT less money, but there is NO oversight, NO testing, NO safety record, and it's basically a glorified battery charger.

I. have. gotten. my. life. back.

Did you get that?? I got my life back! What dollar amount do you put on getting your life back??? I would have paid 10 times the amount!! I can drive to an appointment an hour away, with Jacob, go to the appointment, drive an hour home, and still be okay. For many of my 20 years with Myasthenia Gravis I could not drive at all.

I can walk on the treadmill for 10 minutes and not get out of breath.  I used to get out of breath going to the bathroom.

I can do laundry.  (Aren't you excited for me?!?)  I can vacuum.  The whole house. I can take off and put on sheets on my queen size bed.  BY MYSELF!!!! These may be trivial, monotonous chores for most folks, but if you couldn't do any of that for over 15 years???  Not even put one load of clothing in the washer?  You would understand what a big deal this is for me.

Last summer, for the *first* time since my son was born over 11 years ago, I looked at him and asked him where he wanted to go to do something just for fun.  I had NEVER been able to do that before in HIS entire life. My eyes tear up just writing this.  I've always wanted to be a mom...Always.  And I struggled raising him.  I struggled every. day. of. his. life.  

Until the IonCleanse.  HERE is the link where you can find out more information. I'll tell you right upfront it's expensive.  It's about $2000.  They have a 60 day, 100% money back guarantee if you're not absolutely enamored with this machine.  I noticed after about 6 weeks (well within the 60 day guarantee) how much better my depression was!  I had a teeny tiny hope that the IonCleanse would help with that, but I was resigned to having horrible depression my whole life. That's a whole separate post, and I WILL post more about this, but I don't want this to become a book. (Not right now anyway 😏 )

There is also a payment program that you can sign up for when you call IonCleanse by AMD.... It's kind of like rent-to-own. The people at AMD are amazingly helpful, and they all speak English!! AMD (A Major Difference) is an American company.  Just one MORE reason they are awesome! It's not like you call and get "Bob" from Pakistan to help you.  You may even talk to the President of the company!

Anyway.  I just wanted to share my amazing, happy news, that I have been able to go an entire year without the traumatic experience of getting all of my blood sucked out and put back in my body.  I am prayerfully hopeful that I will never need it again.

Thanks for reading and sharing in my joy. God is GOOD!