Angry

Ain't no sunshine here today folks.

I'm angry today, and I don't care who knows it.

I'm angry at this stupid disease.

I'm angry because it's the 32nd day of wicked humidity and heat and crappy weather that makes my body limp as a rag doll and weak as a noodle.

I'm angry because selfish people talk about stupid things that don't matter 10 seconds from now let alone 10 years from now, when there are people suffering all over the world that would give a million dollars to have YOUR "problems."

I'm angry because young lives end too soon.

I'm angry because other people are healthy and take it for granted.  What I wouldn't give for ONE WEEK without MG.  

I'm angry because so many people are rude and judgemental and make me CRAZY with their whining about having nothing to wear or their hair doesn't lay right or they don't like the color of their eyes, while other people literally fight for their lives every single day.  Well try dealing with having to always buy new clothes because your medications and their side effects and a number of other medically related crappy issues make you gain weight over and over and over.  And how about those who are losing or have lost hair because of illness or medication?  And the color of your eyes?  Seriously?

I haven't seen my ankles since April.  And no one seems to be able to tell me why, except that it's the weather, it's the MG, it's the medication, I'm retaining fluid....

You know, I try to be upbeat.  I am usually an 90% optimist and hopey-lovey.  But today I'm just ticked off.  I just want to FEEL GOOD and NOT be in PAIN.  Is that so much to frickin' ask??  I have a doctor's appointment for something "normal" today, and it's going to be a flippin' Herculean effort just to get in the stupid van and go. Thank God I don't have to take Jacob with me.  But first I have to get in the shower.  I don't feel like I have the strength, but I don't really have a choice. (So I guess if you don't here from me for the rest of the day you can call the National Guard and give 'em directions to my place.)

So to whomever reads this (and this is not pointed specifically at any person, just things that I have been noticing recently from all over the place, and today it just overflowed).... Be thankful for what you have, would you please?

Consumer's Energy: You s#ck.

Dear Consumer's Energy,

I realize that you have a monopoly on power, and trust me, if I wasn't dependent on cool air, oxygen, a nebulizer and suction to live and breathe, I would tell you where to go and how to get there.

Friday morning, after a windy night, 2 power lines were very close together in my pear tree (that you were supposed to have cut down by now). Every time the wind blew, the power lines popped and you could see what looked like a bolt of lightning between the two lines. We were having a garage sale, and every time it popped people ducked. It sounded like gunshots.

I called at 9:19 AM. On Friday. The first time. Someone told me you would get somone out as soon as possible. Silly me thought that would be in a few hours. I called again 2 hours later. Yes, you had my report, and someone would be out soon.

I called 3 hours after that, and you even put in a second report, and ASSURED me that someone would be out FRIDAY yet. When no one had showed by 7:30 PM, I called again, and yet another customer service person assured me it would be "today," and said he was surprised that no one had been there yet! (You and me both buddy).

I did not sleep well Friday night, as you can imagine. I have a neuromuscular disease that requires me to keep my stress level at a minimum, and get plenty of rest. Thanks to you, my symptoms are exacerbated (oh, sorry, is that too big of a word?? They are getting worse).

Saturday morning I called at 9 AM. You would be there as soon as you had someone available. The wires continued to pop and arc. My second call Saturday did about as much good as the previous FIVE calls did.

Sunday, I didn't bother with you, because I really didn't want another lame song and dance, and it wasn't terribly windy, so I figured my house wouldn't burn down today.

Tomorrow (Labor Day) is supposed to be very windy, and yes, it is the last day of our garage sale.

What do I have to do to get someone out here? Get electrocuted? Call 911? Call the fire department? The media?

You are ridiculous. Your "service" is a joke. You can NOT tell me that in SIXTY hours, there has not been one truck available to come out and fix these wires. I am past irritated. I am past frustrated. I'm even passed scared. I am ANGRY. I am so angry. You don't give a crap if my house burns down and I think that's about the crappiest thing ever, because YOU are the only ones who could do a damn thing about it.

I will be contacting the person closest to God in your company, you can be assured of that. I will file a complaint with whomever I need to. I will do whatever it takes. You are a big company and act like you can just sh!t all over people. And you CAN! That's the frustrating part. We all need power.

May someone pee in your Wheaties, and may you experience the fear, frustration and anger that you have caused me.

Very,VERY Sincerely,

Your Less-Than-Number-One-Fan (but don't worry....you ARE number one on a different list I have!)