I am telling you. If it weren't for the internet, I would have already lost what's left of my mind. (And there ain't much left, let me tall ya.) I have gotten some of the most precious e-mails and comments on my blog. And I appreciate them all more than you know.
This is my social life. I don't go out. I don't have a lot of friends. I don't see the ones I do have very often. I don't see my family often enough. So I get most of my warm fuzzies from all of you. And a lot of encouragement and support that is desperately needed.
I don't hesitate to tell you that I am struggling! Oh my GOSH! The frustration of the administrative part of being chronically ill is enough to drive anyone over the edge. Add chronic illness itself, a 4 1/2 year old the Energizer Bunny couldn't keep up with, and a dog with a cough... Hey, that sounds like the beginning of a bad joke... A sickie, a coughing dog and the Energizer Bunny walk into a bar... Just kidding.
So I'm still waiting to get a referral to get into the neurologist at the place closer to home where I'm going to have pheresis, so I'm going to Ann Arbor Thursday for a treatment so I don't completely crash again before I finally get the arrangements made. I swear. Something so simple and people make it so difficult. Especially people who don't even know what I'm talking about, and yet talk to me like I'M the ignorant one. It's a good think I don't have any energy, because someone I talked to on the phone this morning would have my handprint on her face.
That's it for today....uplifting, I know. : ) Sorry...I'll try harder tomorrow.
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
Showing posts with label red tape. Show all posts
Showing posts with label red tape. Show all posts
Monday, April 4, 2011
Subscribe to:
Posts (Atom)
Love Changes Everything by Micah Berteau - A Book Review
If you're not familiar with the story of Hosea and Gomer in the Bible, it's really quite shocking. Here's my brief synopsis...
-
WELCOME SITSTAHS! I'm Kerri, and I am so excited and honored to be today's featured blogger! My dear friend Joanna introduced me to ...
-
If you have made mistakes, there is always another chance for you.You may have a fresh start any moment you choose,for this thing we call ...
-
For my type of Myasthenia Gravis (MuSK+), there really isn't remission. Many people with AChR+ MG can have a thymectomy, and boom, remi...