Heard back from neurology. Under no circumstances will they try the Rituxan again. I had such a small amount (by their standards) of the medication and such a severe reaction that trying again is not an option.
Back to plasmapheresis. So now I'm trying to find a local (within 50 miles) hospital that will do plasmapheresis outpatient so we don't have to drive 300 miles round trip every 3 weeks again.
I just called the "best and brightest" in town, the newest, shiniest, most modern hospital in Grand Rapids, (supposedly) and they don't do it. One other hospital MIGHT, but 1/2 the people who go there end up with MRSA, and half of them die, so I chose to decline.
Oh happy day.
Showing posts with label more pheresis. Show all posts
Showing posts with label more pheresis. Show all posts
Friday, March 25, 2011
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Love Changes Everything by Micah Berteau - A Book Review
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