Oh.my.gosh. I don't know how my mom handled seeing me in the hospital for three months not knowing if I would live or die. My kid has gastroenteritis (probably rotovirus) and I'm a basket case. Of course, I don't know how she ever handeled 5 kids when they all had the flu. I'm at my mom's now, in Wildwood. The relief I felt in making it this far was indescribable.
At the point we're just trying to keep Jacob from getting dehydrated. He sips a little water, a little gatorade (won't touch Pedialite)...The improvement from yesterday to today is dramatic.
Yesterday he was so lethargic...he slept for all but about 4 or 5 hours during the 24 hour day. Today he has only slept for about 3...Not exactly back to normal, but definitely looking BETTER. Which is good. Just being here gives me comfort....I mean, it's my MOM! They fix everything. We're here til Friday morning, so if you are a pray-er...PLEASE pray that he continues to get better and better, and that he doesn't dehydrate, and that we don't get it. Traveling 1200 miles with a sickie is NOT on my top ten list, if ya know what I mean.
I will someday look back on this trip and be able to laugh at all the things that went "wrong." But for now, I just want to get home in one piece, and not think about vacation for a while. At least til I get the pictures developed!
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
Showing posts with label still sick. Mom traveling.. Show all posts
Showing posts with label still sick. Mom traveling.. Show all posts
Wednesday, February 24, 2010
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Love Changes Everything by Micah Berteau - A Book Review
If you're not familiar with the story of Hosea and Gomer in the Bible, it's really quite shocking. Here's my brief synopsis...
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For my type of Myasthenia Gravis (MuSK+), there really isn't remission. Many people with AChR+ MG can have a thymectomy, and boom, remi...