Heard back from neurology. Under no circumstances will they try the Rituxan again. I had such a small amount (by their standards) of the medication and such a severe reaction that trying again is not an option.
Back to plasmapheresis. So now I'm trying to find a local (within 50 miles) hospital that will do plasmapheresis outpatient so we don't have to drive 300 miles round trip every 3 weeks again.
I just called the "best and brightest" in town, the newest, shiniest, most modern hospital in Grand Rapids, (supposedly) and they don't do it. One other hospital MIGHT, but 1/2 the people who go there end up with MRSA, and half of them die, so I chose to decline.
Oh happy day.
Showing posts with label No Rituxan. Show all posts
Showing posts with label No Rituxan. Show all posts
Friday, March 25, 2011
Subscribe to:
Posts (Atom)
Love Changes Everything by Micah Berteau - A Book Review
If you're not familiar with the story of Hosea and Gomer in the Bible, it's really quite shocking. Here's my brief synopsis...
-
WELCOME SITSTAHS! I'm Kerri, and I am so excited and honored to be today's featured blogger! My dear friend Joanna introduced me to ... -
If you have made mistakes, there is always another chance for you.You may have a fresh start any moment you choose,for this thing we call ...
-
For my type of Myasthenia Gravis (MuSK+), there really isn't remission. Many people with AChR+ MG can have a thymectomy, and boom, remi...