I know it's been a while since I posted. For my few remaining readers, I humbly apologize. Things have been a bit crazy. Building a website is a wee bit more time consuming than I had originally anticipated.
Anywho. Here is yet another frustration of chronic illness: dealing with incompetent staff and doctors. Friday I get a phone call from my neurologist's office. It was a young lady with a heavy eastern European accent of some kind.
Completely unwitting, probably-filling-in-for-someone-else-who-usually-makes-phone-calls, totally unaware, heavily accented assistant: {Do your best Natasha from Boris and Natasha voice}
"Yes, this is {some unintelligible name} from Dr. Sullivan's office, may I speak to Kerri please."
Me: "This is she."
Natasha: "Yes, I'm calling to tell you that your labs are normal."
Me: "What labs?"
Natasha: "Your labs. Your blood work. It is all good."
Me: "I haven't had any labs done for Dr. Sullivan. Could this be from plasmapheresis?" {I have to get blood drawn every time they do pheresis because they check my ionized calcium and crit}
Natasha: "Yes, your calcium and complete blood work, is all normal, okay?"
Me: "Yes, I knew that. I always get a copy of my blood work when I get it done. What I DO need is a liver panel done because I'm on CellCept."
Natasha: "They ran a complete blood work. Everything is fine."
Me: {incredulous, voice dripping with disdain} "So you're telling me they ran a liver panel the last time I had pheresis done?"
Natasha: "Yes, they did liver. Everything is good, okay?"
I was like, "Yah, everything is NOT good, thanks for calling."
UN-believable. I know dang well I didn't have a liver panel. What if I were not educated about my disease? What if I were newly diagnosed and didn't know to question EVERYTHING?
So I called the nurse who generously gave me her direct line, and left her a message asking for an order for a liver panel because it's been a long time, and by the way, whoever called me has NO CLUE what they are talking about and maybe shouldn't be calling patients.
So this morning I get a call from a totally different woman (who had a brain). She told me she had an order for a liver panel and wanted to confirm my mailing address. She also said that there was a note from Dr. Sullivan saying that "this isn't really necessary because CellCept doesn't contribute to liver toxicity. But I am mailing you the order."
I went through the roof. I said, "I have a huge problem with that. My previous neurologist was the HEAD of the neuromuscular department at the University of Michigan, and he tested my liver enzymes every 6 months. I've been waiting for Dr. Sullivan to order a liver panel, but he never did, so I had to do it! After my pregnancy, my liver levels were already elevated without even being ON CellCept, and I had to WAIT 3 days for them to go down before my doctor would even let me start taking CellCept again!"
And I proceeded to tell her about Clueless Natasha and her random, inaccurate prattle last Friday.
Needless to say, (yet I say it anyway) I am getting a new neurologist! Preferably one who knows his {beep} from a hole in the ground!
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
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