I can't muster any funnies today. No witty sarcasm. No sunshine or rainbows. I'm just sad and pissed off. I HATE this disease. I hate what it's done to people I love, and I HATE what it's done to me. I tired ALL the time, if I manage to struggle my way to an appointment in town by myself and park in handicapped, I get dirty looks.
I'm exhausted, I'm burned out, I do WAY too much every day, I push my body and mind and emotions beyond their limits every. single. day. And now I'm told I need to do more.
Well, I can't. I've reached my limit in more than one way. I'm on the precipice of sanity. One person is NOT meant to carry this much burden.
Yes, I have God to carry my burdens. Yes, I know the verses and I know the songs. And I can do that, emotionally. But physically, I'M still the one here every day dealing with 100 things when my body can only do 30. So far, except for a couple of wonderful volunteers a couple of hours every other week, it's ALL on me.
And I honestly don't know how much more I can take.
June is MG Awareness month. And today, I want you to be AWARE that MG SUCKS!
Fighting this disease called Myasthenia Gravis (MG) with a little humor, some good friends, and a lot of help from Above.
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1 comment:
I am so, so sorry. I still think you are amazing!! You do what needs doing, no matter how hard it is. It is an example that we all need a little more of. Bless you my friend.
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